Dysfunctional yet Charming
2Apr/114

Yet another medical update

I guess it's time for another medical update, and this time I'm smiling while typing this post. A little more than a week ago I went back to my doctor to have another EKG of my heart to see if I could have something help calm my heart down a little. Since my heart rhythm was fine, I got a prescription of some mild ß-blockers. I'm no fan of medication, and the list of side effects looked pretty scary to me, but I decided it would be nice to have a backup solution in those cases where my heart beat exceeds 130 beats per minute. And apparently the ß-blockers helped me immensely, just by sitting in a drawer! No, but seriously.. I never got the chance to try them out, and don't misunderstand me, I'm grateful for every day I have with a normal heart beat.

So the last week or so I've felt pretty much like I used to before I started experiencing my own private little hell back in the end of October. I'm still scheduled for an MRI in the middle av May to find out more about the scarring, and I'm waiting for an appointment for another ultra sound of my heart. I occasionally still feel a little dizzy and nauseous, but it's not nearly as bad as it was. I also still have a few minor struggles, but it's nothing I won't be able to work through. Funny.. just when I was about to give up on the hope of ever feeling like myself again, something happened and I'm suddenly able to see a light at the end of the tunnel I thought would never end.

For the first time in many months, life feels good!

11Mar/118

Cerebellum? Scarring?

It's been a while since the last time I wrote anything about my health, but it's been pretty much the same. Some days it's better, some days it's worse, but all-in-all it's at least better than it was when it was really bad. I don't think I shared, but I had a CT scan back in January. The CT scan was originally supposed to be an MRI, but someone along the way decided to change it into a CT scan instead. I wanted to have my head checked because I felt like it needed to be done, but in the hospital I was told that it was way too expensive to do without a suspicion of anything serious. Thankfully my doctor is one of the good doctors, he listened to me and ordered an MRI anyway (the one that turned into a CT scan). So, in late February I got a phone call from my doctor telling me that they had found some scarring on my cerebellum - they couldn't tell what might have caused it, or when it had happened - so he wanted to send me to a neurologist for more exams. In the meanwhile he wanted me to stop taking contraceptives immediately, and start on mild blood thinners to be on the safe side.

Today I went to see the neurologist, and man.. what a feeling. I finally felt like I was being heard when saying that there's something wrong with me! I think that alone is enough to make me feel a little better. I refuse to accept that this is all due to my low lung capacity, like they're trying to convince me of in the hospital. He was really nice, he listened and explained everything thoroughly. Apparently the scarring may very well be caused by a stroke, and I will now be examined as if that's the case. Once again I was nearly emptied for blood - OK, exaggerating a wee bit maybe - and now I'm waiting for an appointment for an MRI, for real this time, and of course the test results. Oddly enough I don't feel scared. If anything I feel relieved.. relieved to be heard, knowing that I'm not being hysterical, and the new hope of this being something that will eventually get better.

27Feb/114

I am alive, I promise

Even though I've found the solution to a few of my medical problems, it now seems like I'm having problems spending time in front of my computer. When did that happen? No, seriously, I don't know whether it's my neck, my eyes, my wheelchair, my computer or something completely different, but whatever it is it's making me dizzy and nauseous. So far it seems like it appears as soon as I spend a little time in front of my computer, so today I've spent my day in my electrical wheelchair with my laptop. While I was sitting here testing my theory, I managed to update my blog theme - forgetting all about the customizing I've done, can you believe it? So stupid. Let's just blame the dizziness.

How I've come to the conclusion that my wheelchair, my computer or even both are the source to (at least some of) my problems? Well, the last three days have been wonderful, and I've been away from home, my regular wheelchair and my computer. I haven't been dizzy or nauseous, and I've enjoyed almost four days of feeling almost like my old self again. It's really frustrating to realize that something - which potentially might easy to fix - is wrong, but being unable to do anything about it because I don't know exactly what the problem is.

To look on the bright(er) side of all of this I actually have several posts just waiting to be written, if I could only manage to sit in front of my computer for a longer period of time. I've been on a wonderful two-day cruise to Kiel with Øyvind and two other couples, and it's been sooo good just taking a break from feeling like crap. I'm also planning another piercing, and I'm expecting a visit from both Mr. Postman and Mr. DHL soon - hopefully I'll be able to share everything with you during the following days.

15Feb/116

SILENCE.. and nail polish!

I'm so sorry for being silent the last.. has it been 10 days already? The reason for this little vanishing act has partly been a long and very nice visit from my older brother, and then one of my older sisters decided to join us all for a couple of days, and partly because I haven't been feeling all that well. I mean, what else is new? Just to give you a little update on my current health status I've kinda figured out a few things, completely on my own, for instance what's been causing my rapid heart rate, making me feel bad and exhausted in general. Yesterday and today I've been feeling like crap due to a tremendous headache, which feels like an alien is about to sprout from the top of my head. I'm sorry for any images that might have caused you. Anyway, I've tested my theory for a few days now, and my heart rate has kept pretty much normal. Yay me!

It has been really awesome seeing my brother again. I think it's been six years since the last time I saw him. I know, way too long, but that's the way it is when you live at opposite parts of the world. I miss him a lot, he's by far the best big brother out there. We didn't really do anything much because of the bad shape I've been in, but it was nice just hanging around - and we have lots of good laughs while playing cards. My sister needed a bit of a vacation, and seemed to be having a good time while visiting us and our two little rascals. Believe me when I say it was all weird and empty here when they left last Friday.

OPI Shatter and Teenage DreamSo today was Valentine's Day. Who cares about Valentine's Day? I certainly don't, so now we have that out of the way. Moving on!

Lucky as I am Mr. Postman came by with a package for me, and that package totally made my day! It contained two O·P·I nail polishes in "Shatter" and "Teenage Dream" from the Katy Perry collaboration. If you want to see how they look, take a peek at this gorgeous manicure by the fabulous Neglelakkmani, who was also kind enough to get me these two beauties. You are such a sweetheart, thank you so much again!

Photo © Shamini Thevarajah '11

30Jan/112

Hanging with Fieran and Pinchy

I have really been looking forward to this weekend for more than a month, since Fieran and her man was coming to visit me and Pinchy here in Trondheim. We've been messaging back and forth on Twitter for quite some time now, and social as I am I really enjoy meeting the people behind the nicknames I know so well. Of course my body had to f*ck it up for me, so today I was unable to join them at all. I'm not feeling well, and I had a hard time getting out of bed today. It was kind of sad, as I would love to join them before they had to go back to Oslo, but what can I do?

We were out together yesterday. Our first try was at Choco Boco Nordre where I was unable to participate since their "ramps" were not ramps at all, being hazardous to use with a wheelchair. Oh well. Trondheim is an old city, and I'm used to encountering places I cannot enter because I have wheels. We then went to Bær & Bar at Solsiden, which was completely packed with people, where we sat for a little while before we moved on to our apartment. Finally somewhere calm enough to talk! Later that evening we decided to go to Old Dublin Steak House for dinner - my very favorite restaurant in Trondheim. In the middle of dinner I suddenly started feeling dizzy, and with the dizziness comes the nausea. I was so devastated I almost started crying, but I did my best to stay as long as possible.

Fieran came bearing goods and gifts, and in addition to Oomph and Marvel eyeshadows, Siahi Fluidline from M·A·C Mickey Contractor and two palettes from Inglot Cosmetics, she had also bought me Chanel Ombre Essentielle Soft Touch Eyeshadow in Amethyst as a gift, an absolutely gorgeous purple duo-chrome (check Café Makeup for swatches). Thank you so much, Fieran - a perfect gift for a purple lover like myself. Grin

It was a real pleasure to finally meet Fieran and her man, to spend time with both my girls, and I hope I'll get the chance to see them again soon. We had a wonderful time yesterday, and I'm so glad our men also seemed to have things in common so they could talk about gadgets, cars and electronics without having to partake in our never-ending rantings about everything beautiful, colorful and limited edition. I'm very grateful for having such wonderful friends and family in my life, it really means the world to me. You make my days so much better when I'm feeling down, and I seriously don't know what I would do without you.